2011년 10월 26일 수요일

a time filled with joy and excitement

"Your son will have limitations on what he wants to do with his life". Our attitude, our efforts, and our determination would directly effect my quality of life. Legend goes that I tested positive several times for the disease, but the doctors hesitated to believe the results due to my a-typical symptoms. She never treated me differently because of CF. The new endeavor, NIKE TN pas cher,http://www.runsickboyrun.com, maps his journey to get into the best shape of his life. He said, "Listen, Ronnie has a physical disability, but you don't have to make him mentally disabled as well." With that, my mom decided to do what I feel she was born to do, just be a mother.Ronnie Sharpe, 29, is a born and raised Arizonian. And so the journey began.Once I was diagnosed, my mother was frightened and confused. Doctors didn't stop there however. Here she was a 24-year-old woman, with a husband who was constantly away on military duty and obligations, with a sick child and information that didn't paint a pretty picture.Motherhood, for most, is a time filled with joy and excitement. He has a passion for people, politics, blogging and working out. I often think back to that time (by putting myself in my mother's shoes) and feel extreme sadness for what my mom must have been going through. The list of "certainties" my mother was told only went on: "Your baby isn't in perfect health". But what about the few mothers who are faced with the unexpected? The potentially devastating? Some women were created to face these challenges, I'm lucky enough to call one of those women Mom.I thank God everyday for my mom. I had a rash from head to toe, was very cranky, and due to an inability to keep food down, dropped close to my birth weight. She has never, ever, let me view CF as a crutch or curse. In 1980, the year of my birth, about 4% of people born with CF died in their first year. Prior to http://www.runsickboyrun.com, Ronnie has been a Timberland 6 Inch Femme jack of all traits. She had never heard of CF and with a life expectancy of 20, the outlook was grim. After graduating from his beloved University of Arizona with a degree in psychology, Ronnie explored many of his passions. Diagnosed with Cystic Fibrosis at 6 months old, Ronnie considers his life a blessing and lives to be a blessing to others. She threw out all of the "certainties" doctors burdened her with, but allowed one piece of advice to mold her mindset. "Your child isn't like other children." "There's a good chance your son won't live long enough to graduate from high school". There I was diagnosed with Cystic Fibrosis. "Consider yourself blessed if he sees his twenties". Ronnie recently began working on a blog to share his life as a CFer. He's coached football at Pima College and founded his own t-shirt company, Anomaly Tease, but his heart is truly in non profits. Before I was diagnosed, nobody knew what was going on. At six months of age, after months of guess and check, I was taken to University Medical Center in Tucson, Arizona at the behest of my military doctors. Is there a manual on how to raise a child with CF? No, but my mom sure should write one. Want to know where my outlook on CF came from? Her name is Christine. My mom was the perfect woman to be put into this "dire" situation. I had CF; CF wasn't going to have me. It is his eternal optimism and faith that enable him to take on life's challenges unnerved and with a smile on his face. "Don't expect a normal life for your child". I didn't show typical symptoms of CF. There was no way in the world she was going to let me be a statistic. My case was actually written up in a medical journal because of my unique manifestations of the illness at a very young age. One doctor blamed my "failure to thrive" on my mother's breast milk, another thought it was allergies. I went to different doctors, all of which had different opinions. She has been the best teammate aTimberland Tall Zip Femme (sick)boy could ask for. We were, together, going to face this disease head on. Being told that you will outlive your child is something that any parent would dread hearing. A true believer in personal responsibility, he hopes his blog will show CFers that they can control their disease and inspire others to join his fight. After a stint working with RockHeart, a clothing company whose proceeds go to helping children's charities, Ronnie started the Get Goin' Cafe at a homeless shelter in Phoenix..

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